Congratulations James and Kristen!!!
I don't mind that question at all. In fact, sometimes I appreciate the opportunity to "defend" our decision to have more. Not that anyone has made me think I need to. I have heard through the grapevine that there are those (not on this list, or any other) that question why my husband and I keep having kids knowing the risks. Their opinions don't really phase me, but I also don't like knowing that others have questioned a personal decision between my husband and I.
To answer your question, I will talk about my faith, so if anyone else reading is not interested in reading what could be perceived as "religion talk", you may want to stop here. =) You've been warned! ;)
Our first child, a son, was born without CF and life was great! We had decided before marriage that we wanted four kids. So, pursuing that goal, we had our 2nd child, two yrs later, another son. This time, life wasn't so great. He was not "thriving" and after 3 wks., was diagnosed with CF through newborn screening (Yeah for newborn screening!). Obviously, it was a hard hit for us, as everyone on this list knows all too well. We were blindsided because we have no relatives at all with CF and hadn't really heard of CF that we remembered. At that point, I struggled with what to do next. I still wanted more children, but didn't want to keep "doing this" to my kids. It was one thing to have it unexpectedly, but to knowingly allow a child to be born with CF, was I okay with that? I wasn't sure.
To explain what it was that secured my decision for me, I must first tell you that I have a personal relationship with Jesus Christ and I believe that that is the way to heaven when we die.
A dear friend of mine was talking with me one day as I was asking the questions, "do we have more?" How will my child feel knowing that I essentially "allowed" this to happen to him/her? etc. She pointed out that we never really know what the journey of life will bring for any of us and that though this life may be tough for a time, it does not even compare to what we have to look forward to after we die. So, I considered that statement for a long time and it gave me comfort. As much as I do not want to see my children suffer in anyway, this life is but a drop in the bucket and there is so much more to come that IS worth living for.
That does not mean I wasn't absolutely heart broken with each new diagnosis, but the realization that God IS in control and that He has a plan for each of my kids' lives and for my own (and my husband's) does get me through. I still have days that I question why God allowed this in our family and have often tried to "inform" God that I am not capable to handle all of this, but I also know that we aren't given more than we can bear.
So, that's my answer!
That said, there are many on here who have had other children after the cf diagnosis and those children do not have CF. Oh, I wish that were our story, but I don't regret our decision to have more kids. My kids are SO precious (of course!) and just add such a wonderful dynamic to the family. It's a tough decision to make and the answer that was right for me may not be right for others, but I have peace with it and I hope that you have peace with whatever decision you make.
Thanks for asking! Hope you're not regretting your question! haha