Saturday, March 31, 2007

Funny stories by Carter

This is a story about Carter. He comes up with some of the funniest (sometimes embarrassing) things. I will post these stories from time to time. Enjoy!

One day recently, Carter voluntarily laid down to "nap" in the playroom (because Jackson was napping at the time). He was being pretty quite so I went to peek in and he was playing with toys. I didn't mind because I had not told him to take a nap. About 10 minutes later he came out and said, "I just took a short nap." I said, "No, you didn't. I saw you playing." He said, "Okay, let's try that again." Then on his way back to the room, he turned and said, "Mom, don't try to see me playing."

Thursday, March 29, 2007

Jackson's latest CF check up was good news!

Jackson is doing very well. He is about 65%, weight for age, on the growth chart, and 95% weight for height. That's amazing for a CF patient.
He has not had any major illnesses and even managed to avoid catching Carter's pink eye and bronchitis. He has not needed his TOBI meds since last June. This is an anti-biotic taken through a nebulizer to put medicine into his lungs. It is very common in CF patients and many have to take it regularly (28 days on, 28 days off, 28 days on completes a cycle). He has only ever had to use the TOBI meds twice and each time, only for the first 28 days. That means that his lungs are very healthy and able to fight infection.
He's two years old now and seems to have grown up overnight recently. He's still a handful and keeps us going...non-stop! But, he's a lot of fun and a cutie!!!
Thanks for your prayers!

Cystic Fibrosis

What is Cystic Fibrosis?

Cystic fibrosis (CF) is an inherited chronic disease that affects the lungs and digestive systems of about 30,000 children and adults in the United States (70,000 worldwide). A defective gene causes the body to produce unusually thick, sticky mucus that: clogs the lungs and leads to life-threatening lung infections; and obstructs the pancreas and stops natural enzymes from helping the body break down and absorb food.
In the 1950s, few children with cystic fibrosis lived to attend elementary school. Today, advances in research and medical treatments have further enhanced and extended life for children and adults with CF. Many people with the disease can now expect to live into their 30s, 40s and beyond.

Symptoms of Cystic Fibrosis

People with CF can have a variety of symptoms, including:

  • very salty-tasting skin;
  • persistent coughing, at times with phlegm;
  • frequent lung infections;
  • wheezing or shortness of breath; and
  • poor growth/weight gain in spite of a good appetite


  • About 1,000 new cases of cystic fibrosis are diagnosed each year.
  • More than 80% of patients are diagnosed by the age of three.
  • At least 40% of the CF patient population is age 18 or older.
  • In 2005, the median age of survival was nearly 37 years.

For more information on CF, go to (Cystic Fibrosis Foundation).

"Who Am I?" Awesome Video

Before playing this video, please scroll down to the bottom of the page and pause or silence my music player. Enjoy! This is awesome!!!