Friday, June 8, 2007

Jackson's CF Update

Jackson is doing well overall. His weight is between 50% & 75%, which is great for a child with CF. His height seems to be taking more after Mommy than we would like, but it's okay.

Wednesday (the 6th), they did his annual tests, blood work and lung x-ray. I don't have the results of the blood work yet, which will check his vitamin levels, liver enzymes and more (that I don't even know, I'm sure). The x-rays show that there is mucous growth in his right lung. His lungs had been very clear up until now, so it was a bit discouraging. The Dr. said that it's not real bad, but because it is an increase, they want to begin treating it aggressively. So, added to his daily treatments will be Pulmozyme. It is not an anti-biotic, which I'm glad for. It is used to thin the mucous in his lungs and will have it's biggest benefit if used during his chest therapy (The VEST)-that will be a trick to get him to do both at once!

He's had the Vest for a few months now and he still resists it, though he's getting much better at it and can tolerate it for a longer period of time. The Pulmozyme will be put in his Nebulizer and so, he'll be doing a breathing treatment and the Vest together...with lots of prayer and muscle!

The Dr. also noticed a cold coming on and she was right. The next day he woke up with a cough and runny nose, so they have prescribed an anti-biotic that he will take for 14 days. I wish I didn't have to put him on it, but that's what will cause more mucous in his lungs, so we have to weigh out the pros and cons and do what they tell us!

The good news is that they can catch all of this so early that it can be treated immediately and not have time to get ahead of us so much that we can't maintain his health. I was recently on a website www.cysticfibrosis.com, which is not the same as www.cff.org published by the CF Foundation), and was reminded of how fortunate we are to be living today. Just in my parents' lifetime (1950's), kids with CF didn't live to attend Elementary school. I am so thankful that I live in a time when the average life span is up to about 38 years. Of course, we hope and pray that by the time Jackson is 38 (36 years from now) even more science and research will be done to make that age at least double!!!

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